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Resources for Parents

The primary goal of this web site is to be a resource to parents and other concerned parties of those who are mentally retarded or developmentally disabled.

IN THE BEGINNING...
0-3 YEARS

TEAM HEALTH CARE FOR KIDS
at the
CHILD DEVELOPMENT CLINIC
Children With Special Health Care Needs
Utah Department of Health
(Submitted by Judy Zimmerman, Children With Special Health Care Needs)

The Development Clinic is a Utah Department of Health program that serves children, birth to five years of ages, with special health care needs such as:

 

Medical/Physical Challenges

 

Emotional/Behavior Difficulties

 

Developmental Delays

 

Autism/Pervasive Developmental Disorders

 

Speech, Language and Voice Disorders

 

Attention Deficit/Hyperactivity Disorders

The program focuses on providing a team assessment for children with challenging behavior and/or development that is delayed, unusual or difficult to diagnose.

Team Health Care For Kids provides specialty assessments including developmental pediatrics, psychology, speech and language, social services, nutrition, hearing, physical and occupational therapy.  They also provide access to specialty medical care such as neurology, cardiology, orthopedics, and cleft lip and palate.  They coordinate a child’s care, as well as consult and collaborate with community agencies and private providers.  They can help families find and utilize a medical home.

Anyone who is concerned about a child is encouraged to contact the Clinic for more information.  You can call the Child Development Clinic at (801) 584-8510 or toll free at (800) 829-8200.  Services are provided and billed based on a sliding fee scale.  Specific financial eligibility and charges can be determined by contacting the Clinic.  Service will not be denied because of inability to pay.

For more information on Children With Special Health Care Service Programs, you may contact the Nursing Case Manager in your area:

 

Cedar City

:

(435) 586-2437

 

Moab

:

 (435) 259-5602

   

Ogden

:

(801) 626-3645

 

 

Price

:

(435) 637-3671

 

 

Provo

:

(801) 370-8754

 

 

Richfield

:

(435) 896-5451

 

 

St. George

:

(435) 673-3528

 

 

Vernal

:

(435) 781-5475

GETTING SITUATED...

3 - 14 YEARS

By the age of three years, you should have a clear idea of what your child's school years will hold for him or her. A representative from your local School District and a Transition Coordinator from an organization like KIDS ON THE MOVE will have helped you to understand the many options available.

The School District will provide testing designed to help determine the best placement options for your child. An Individual Education Plan (IEP) will be developed for your child to ensure that individualized goals are created, with a clear plan on how to obtain those goals. Working as a team, you, the Transition Coordinator, and a representative from the School District will begin the long process of securing your child's bright future.

UP AND RUNNING...

14 - 22 YEARS

Transition from the public school system to the adult world can be a stressful time for any student. Critical decisions need to be made, and important issues need to be considered, in order for the student to make a successful transition into adulthood. This time can be especially stressful for a student with disabilities and his or her parents.

Without careful planning and preparation, this transition can be very difficult and full of setbacks and disappointments. There are two major purposes for transition:

#1 To identify and develop the skills and activities needed to prepare students to be able to live, work, and participate in the community as successfully and independently as possible by the time they leave the school system.

#2 To identify, establish, and put in place the support services necessary to insure that this participation is maintained over time.

The Alpine School District has a transition and Employment Center called ATEC (Alpine Transition & Employment Center). ATEC provides disabled students within the district the following services:

1. Transition Services for Students with disabilities, ages 14-21 years. This includes School to adult Vocational Skills, Employment, and Independent Living.

2. Day Training for Adults with disabilities. This includes Supervised Employment at the ATEC Employment Center in the following areas:

  • Wood Shop

  • Custodial Laundry

  • Seasonal Contracts

  • Collating

  • Recycling

3. Supported Employment for adults with disabilities. This includes Individual Employment and Small Group Employment at businesses throughout Utah Valley. They also have Job coaches providing support as needed. ATEC's mission is "to enhance self esteem and to cultivate skills necessary to enjoy life as productive, independent citizens. Positive training is provided to develop personal gifts and talents resulting in citizens who make confident choices in directing their own future". For more information or a referral to a similar program in your area, please contact the Alpine Transition Employment Center at:

ATEC

350 North State St.Lindon, Ut 84042 Phone: (801) 785-8727Fax: (801) 785-8790

FULL SPEED AHEAD…

22 YEARS AND OLDER

MRAU joins VOR in applauding the decision made by the United States Supreme Court regarding the right of choice for disabled individuals seeking places of care. Quoting VOR's Amicus Curiae brief, the Supreme Court [on June 22, 1999] in Olmstead v. L.C. and E.W., held that "Each disabled person is entitled to treatment in the most integrated setting possible for that person--recognizing that, on a case-by-case basis, that setting may be an institution."

In the 6-3 ruling, the Justices ruled that unjustified institutionalization is discrimination, but also emphasized that "nothing in the ADA(Americans with Disabilities Act] or its implementing regulations condones termination of institutional setting for persons unable to handle or benefit from community settings." The decision is a victory for VOR and other organizations that support choice in residential settings, and discourages advocates in support of total deinstitutionalization.

Plaintiffs in Olmstead were two mentally disabled adults who once needed institutional care. They progressed to the point where community care was feasible, and strongly desired by each of them. In handing down its decision in support of the plaintiffs' request to receive community-based care, the Court emphasized that a State must be granted the flexibility to meet its obligations to maintain a range of facilities for the care and treatment of persons with diverse mental disabilities. A State may, the Court ruled, assert a fundamental-alteration defense that would consider the resources available to the state to provide community-based care to the litigants, as well as its obligation to serve others under its care.

The decision by the Supreme Court sets forth three conditions which must be met prior to transferring an individual from an institution to a community-based setting: (1) the State's treatment professionals determine that such placement is appropriate; (2) the affected persons do not oppose the transfer; (3) the placement can be reasonably accommodated, taking into account the resources available to the State and the needs of others with mental disabilities. Family involvement remains critical in placement decisions under the first two elements.

Relying on VOR's brief, the Court cautioned that no one should read the ADA to compel States "to phase out institutions, placing patients in need of close care at risk," while also recognizing community based care is more appropriate for many people with mental retardation and other disabilities.

The Supreme Court's decision signals a victory for all people with mental retardation and their families. Lawmakers are now directed to honor choice.