About MRAU

Resources for Parents

Frequently Asked Questions

VOR Weekly Updates

Legislation and Legislators 

MRAU / UDSC Outpatient Dental Clinic

About the Utah State Developmental Center

Links

Membership in MRAU

Contact Us

     
 

About MRAU

Mission Statement

MRAU was founded in 1948 as a volunteer advocacy organization dedicated to fostering the dignity and actualization of people with mental retardation and developmental disabilities in the state of Utah.

I. We support individuals with mental retardation and developmental disabilities, in partnership with their families / guardians, as the primary decision makers with regard to living arrangements and support services.

II. We work actively with Congress, State elected officials, government agencies, and all other concerned organizations to improve the quality of services and life satisfaction in both institutional and community provider settings.

III. We educate individuals, their families and guardians about their rights and services so that they are empowered to exercise full freedom of choice. 

IV. We promote the involvement of society in the lives of people with mental retardation and developmental disabilities, irrespective of the settings in which they live, work, or recreate.

Vision Statement

MRAU will be a source of strength, support and information for all individuals having mental retardation and developmental disabilities, their families and their guardians. Working together with schools, allied charitable organizations, professionals, legislators, and all other concerned parties, we will promote the general welfare and best interests of those who can, as well as those who cannot, speak for themselves.

Core Values

People with mental disabilities and their families/guardians should be empowered to have as much control as possible over their individual lives.
  • People should be safe, free from abuse and neglect.
  • Society has a responsibility to educate public and government officials regarding the needs of people with developmental disabilities and mental retardation.
  • We recognize that individuals are unique and therefore we emphasize individualized person-centered planning.
  • Support systems should be in place for people with developmental disabilities/mental retardation and their families.
  • We support community quality assurance standards and a system of monitoring with appropriate parental/guardian input.

MRAU Board of Directors

MRAU Board of Directors

MRAU Executive Committee


Anderson, Lillian

Bellows, Dennis

Day, Don

Jex, James “Jim”

Kesler, Steve

Mace, LaReal

Meyer, Bonnie

Peters, Debbie

Riddell, Dawn

Riddell, Rod

Robinson, Dean

Robinson, Ramona

Sims, Benjamin A. “Ben”

Twiggs, Boyd

Williams, Beth Ann

Zitzmann, Carola

 

 
Jim Jex – President

Boyd Twiggs – Treasurer

Bonnie Meyer – Secretary

Dennis Bellows

Dawn Riddell

Rod Riddell

Dean Robinson

Carola Zitzmann

MRAU Milestones

MRAU was organized in 1948 as the Parent Association for the Utah State Training School (now known at the Utah State Developmental Center); our name was the Children's Benevolent League of Utah (CBLU). There have been several name changes over the years, the Mental Retardation Association of Utah being the latest. This has recently been shortened and our organization is now known simply as MRAU.

MRAU has worked hard to make a difference in the lives of those with a disability of mental retardation, and in the lives of their families.  A great deal has been accomplished over the years, but nothing has happened by chance.  Change has come because the membership and our directors are now, and always have been, dedicated to the big picture, to obtaining quality programs and assistance for those we serve. 

Please continue reading for some past accomplishments of our pioneer organization serving persons with disabilities over the years since 1948 to the present.

1948-1950  Chapters were established in various counties throughout Utah.  We met with forty-two parent representatives to unite our efforts under the banner of a national group called Parents and Friends of Children with Mental Retardation.  We later changed the name of this national organization to the National Association for Retarded Citizens (NARC).

 

1951  We became a charter member of NARC.  During the ‘50’s, our first president, Alton F. Lund, became NARC’s fifth president.

 

1952  Our Salt Lake County Chapter established one of the first day care facilities for the mentally retarded in a house in the Salt Lake City Sugarhouse Fairmont Park, which was later the Rotary Training Center.

 

1953  The Association’s name was changed to the Utah Association for Retarded Children (UARC), and we expanded our function statewide in order to correspond and identify with the national scene.

 

1954-1958  During this time, we were instrumental in gaining the interest of many service clubs, organizations, and other folks to volunteer their time, talents, and financial contributions to the residents at USTS.

 

1959  We took the leadership in establishing the first group homes in Utah.  UARC split from our organization because at that time, our seventh president, Dr. Edgar Stultz, was UARC’s first president.  Our association took the name of STSARC (State Training School Association for Retarded Children), and became a member of UARC.

 

In the 1960’s we led the way with the first major effort of lobbying in behalf of the retarded.  From this grew a continuing legislative program which saw substantial increases in state and federal funding for USTS as well as funding for other services in communities throughout the state.

  • Many major bills were sponsored over the years by MRAU.

  • Started the annual Christmas party.

  • Provided Christmas gift socks for all residents of USTS.

  • Backed and aided with the development and formation of Fairyland Park.

  • Donated many items such as TV sets, record players, and other furniture items to residents and their buildings.

 For many years our members have served on councils, committees, and advisory and policy-making boards at the local, state, and national level.  In so doing, we have made vital and significant contributions benefiting the disabled.

 

1962  Our members contacted Hal Knight, a reporter for the Deseret News, who wrote a series of impartial articles appearing in the News.  This brought to the public attention some upgrading that needed to be done at USTS.  The series was later published in a brochure entitled:  “Utah’s Black Eye: Training School.”  This brought about some good changes and upgrading at the institution.

Our organization established a Cottage Coordination Committee, composed of parents of USTS residents.  Over the years, countless hours, many items and improvements, and thousands of dollars have been donated by MRAU.  This has funded many individual cottage projects, providing many “extras” for the residents.

 

1963-1966  With the help of USTS’s new superintendent, Dr. Guy Richards, we made sweeping changes as the “open door” policy became a dream come true for the parents.  The first major federal grants were obtained providing new and improved programs for the residents.

Numerous fund raising projects were held by MRAU, and funds from these events went to improve USTS.  Projects such as the canteen, playground equipment, a metabolic and genetic laboratory, a greenhouse, dental equipment, and much more were funded at this time, and throughout the years since.

 

1967  Through our organization and Dr. Sagers, superintendent of USTS, the school received major increases in state and federal funding.  Many advantages for USTS were seen in new and innovative programming, and in a cooperative relationship between parents and the administration.

 

1968  We helped USTS open and finance a sheltered workshop pilot program in the community of Pleasant Grove.  This was the first off campus workshop of USTS.

 

1969  We established a joint relationship between USTS and the College of Medicine at the University of Utah Hospital.  This was accomplished through a cooperative effort by all.  This relationship has been a great asset to clients and everybody involved.

In the later ‘60’s, we helped establish the first community group homes in the state under USTS administration, as well as purchase furniture and other helps for other community programs.

 

1970-1971  We provided an ongoing public education program through the media of TV, radio, and newspapers.  Our newsletter, “The Utah Beeline,” gained national and state interest and recognition.  We produced brochures, slide and film presentations, began a speakers bureau, and also provided referrals and other information to parents and/or family members.

 

1972  We changed our name to the Mental Retardation Association of Utah (MRAU).  We also expanded our role in advocacy statewide, and opened the Value Village Thrift stores in Salt Lake City as a fund raising project.

 

1973  We received a three-year federal grant to provide a statewide advocacy program for the retarded, which included personal one-on-one legal and medical advocacy by volunteers—caring persons who, many times, were not related.  We also received another federal grant to provide a statewide community education program for the retarded, through utilization of community schools, that consisted of self-help skills and leisure activities.  A five-year program was operated from Logan to St. George.

 

1974  We provided the first money contribution for building the Adventure and Learning Park at the north end of USTS property.  Eventually, we donated $21,000 and aided in the full development of this park, which consisted of a number of picnic tables, benches, a large lake with paddle boats, fishing, etc.  This park was enjoyed by many USTS residents for years, although it was later leased to the county due to the expense of repairs, clean-up, and upkeep.

MRAU formed a new national organization, the Mental Retardation Association of America (MRAA).  Representatives from twenty-two states met in Chicago to form the new association, which represented a strong national voice for the continuation of institutions for the retarded at a time when the deinstitutionalization movement was beginning.  From this time to the present, MRAU has worked hard to keep USTS open and have it as a choice for parents.

MRAA helped to turn the tide toward a realistic and common sense philosophy.  The slogan “The Balanced Approach” was coined.  MRAU and MRAA support both quality institutional and quality community programs.

 

1975  MRAU successfully defended USTS against a TV news series exposé, and provided leadership in response through the media.  We funded and produced a 30-minute TV special in answer to the accusations called “In Prospective—USTS.”

 

1976  MRAU received a service contract from the state to operate eight group homes.  We established two new committees to monitor USTS’s physical buildings, client care, program involvement, and the aversive therapy and human rights programs.  Through the Cottage Committee, our Association provided a surrogate parent function for USTS residents without parental involvement.

 

1977-1980  The 1980’s were filled with many challenges and successes.  We increased our determination and our fiscal strength, and looked forward, with confidence, to a sound and productive future.  Largely due to dedicated presidents, board members, and committee parents, we grew to new and greater heights with even more conviction to maintain all residential services such as those provided at USTS (the first and only state-owned intermediate care facility), privately owned intermediate care facilities, and community group homes.

MRAU gained obvious prominence as we helped build outstanding improvements and programs including, but not limited to, the parent monitoring programs both in the community and at USTS, as well as being active in the Legislative Coalition at the Utah State Capital.

 

1988  MRAU received a federal grant to provide volunteer advocates for individuals at USTS and in the community who were unable to represent themselves.  This included an advocate training manual which was used in the extensive training of volunteers.  We remained active in the Legislative Coalition for People with Developmental Disabilities

 

1990s  MRAU extended greater advocacy service to individuals living in group homes, at USDC (Utah State Developmental Center, formerly the Utah State Training School) and all other intermediate care facilities, in apartments, and to those living at home with family members.  Thom Anderson, the advocacy director, was most capable and effectual in carrying out the advocacy program.

MRAU made enormous progress with the help of presidents Boyd Twiggs and Dr. R. Dean Robinson who continued to work with legislators, the Department of Human Services, and all organizations who were interested in the enhancement of living conditions for all individuals who have developmental disabilities, whether they live in group homes, apartments, their parents’ homes, at USDC, or any other intermediate care facility or residential setting.

1997  MRAU’s aim through our many years has been to keep all intermediate care facilities open, including USDC, so parents will have a choice of residential placement.  We have also endeavored to perform a service for you, and for your family member with a disability.  MRAU has remained active in legislative lobbying and in speaking personally with state and federal legislators for the preservation of program funding to assure quality services and protection of human rights.

1998  Great progress was made by using more volunteers from the community, due to our very capable volunteer coordinator and MRAU office director, Marina Graham.  Donations of money for specific purposes were made to several organizations, i.e.:

*$1,000 to the Dan Peterson School towards an awning so the children could enjoy being outside the building and still be protected from the sun.

*$1,000 towards a statue at the American Fork Cemetery to honor the handicapped and provide a place for anyone to meditate and find peaceful refuge.

*MRAU also donated towards the cost of counter tops for the dental clinic at USDC. The possibility of this clinic serving the dental needs of clients living in the community is coming closer to reality all the time


2000  A new century has brought a new chance to evaluate where MRAU’s greatest challenges and achievements have been, and where we want to go from here.  We are still continuing to donate money to help with research and treatment—such as the $3,000 MRAU donated to the Huntsman Cancer Center at the University of Utah—and we are still foremost in the fight against the closure of all institutions nationwide. 

MRAU, with the able assistance of Attorney Benjamin A. Sims, was instrumental in bringing to a close the Lisa P. Lawsuit, a lawsuit intended to force the State to close USDC.  Mr. Sims donated his time to this effort, and with the support of MRAU and the parents of the residents of USDC, the courts saw the wisdom in closing this lawsuit with prejudice, which means it can never be re-opened under any circumstances.  While this was a great victory for choice in residential facilities for the developmentally disabled, we must still be on guard, for many people, for a variety of reasons, would like to see USDC, as well as all other institutions for the developmentally disabled, closed permanently.

As has been our policy since our inception in 1948, MRAU is dedicated to preserving a high quality of life for our family members with any type of disability.  We continue to advocate their right, and their families’ rights, to decide on their care and their living arrangements.  We call on all people everywhere to look beyond the hype presented in the media, and take steps to protect our most vulnerable citizens.


2001  MRAU instigated a program designed to obtain more funding from the Legislature as needed to enlarge and maintain the dental clinic at USDC. Working with Representative Margaret Dayton, MRAU was successful in lobbying the Legislature to earmark $100,000 to modernize the dental clinic at USDC.  Matching federal funding from Title IXX brought that amount to approximately $300,000, which allowed USDC to make the dental clinic one of the most up-to-date clinics in the entire state.

With the beginning of a new century, MRAU has enlarged and expanded its scope to include to a greater degree those who live in the community, i.e., in group homes, supervised apartments, or at home with their families.  A greater emphasis has been placed on obtaining better services for these people and helping them reach a higher quality of life.


2003  MRAU has survived the loss of revenue sustained when Vintage Thrift went out of business, we have survived the sag in the economy as a result of the attacks against the United States in 2001, and we are actively soliciting participation in and leadership of MRAU from young parents. 

The web site, originally managed by Ed Armstrong and now taken care of by his brother David Armstrong, has been updated to create a new and exciting image designed to attract the attention of parents, caregivers, and others interested in the MR/DD population. 

For years MRAU has found, trained, and supervised volunteers to work with and for the individuals living at USDC.  This program is now in the process of being expanded to extend that same service to other facilities, such as ICFs/MR, group homes, etc.

MRAU President, Dr. R. Dean Robinson, has been actively working with government agencies and private donors to bring the USDC dental clinic to the point that MR/DD individuals anywhere in Utah can come to USDC for treatment.  Included in that project are plans for respite care so those individuals needing general anesthesia for dental treatment can be monitored to ensure complete recovery before returning to their homes.


MRAU Newsletter Archives